Hazie, she really doesn't have freckles,it is the iPhone photo!
As good as Hazie is looking she is clearly not out of the woods with this infection. We are at a wait and watch and see for the next couple of weeks.
The PIC line went in very well. They tried it last year and getting the tubing around her shoulder bone was not possible. So we were very thankful it went well with no complications. Hazie is very small, I am not sure how much she weighs now but no where close to 30 pounds and she is 3. I'll guess 24 to 25. Jen, help me out here.
The fourth doctor and his team conferred with the others and jointly they decided that they would take her off one of the meds to see what happens. It is a heavy duty antibiotic and kind of a last resort and since her inflammation came down so dramatically to 6 today they are satisfied that she is heading in the right direction. They don't want to over use that medication. She is still on another one that she will stay on with IV infusion (4 times a day and it take 2 hours to administer each time) for at least the next ten days. Jen and Lowell will learn how to administer it through the IV port with the help of a home health nurse when Hazie gets good enough to go home again. She is still a sick little girl but the port will make it plausible for her to go home sooner than later. A lot depends on the numbers tomorrow.
In general, they are very pleased with her progress and feel they do not want to do anything invasive right now like the spinal tap or anything around the shunt revision. Too risky unless absolutely necessary. So far, they are convinced that the infection is clinging to the shunt tubing but has not gotten inside or into her spinal fluid. This is is the way they want to keep it!
So the plan is get home as soon as she can go with IV meds for another ten days to two weeks. After that watch her very carefully and pray it doesn't come back. If it does come back when the IV meds are finished she will have to have the surgery in a couple of weeks.
So she is still a sick little girl but getting better thanks to the faith of many people, family, friends and doctors. Please continue to pray for her we need this miracle to keep on going until the perfect day when she is well again. Thank you all so much!
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P.S. Grampa has arrived and will help for awhile until they are back into their regular routine again. He replaces Lowell's parents who went for Thanksgiving and are still there!
