Tuesday, November 30, 2010

Look Who is Gabbing On The Phone!

Hazie, she really doesn't have freckles,
it is the iPhone photo!

Look who is sitting up, smiling, eating, playing with her baby AND talking on the phone! Jen took this and put it on Facebook last night. She looks like a different child than the one they brought in last week. We love miracles! Thank you to the fantastic medical professionals and to all of you that have been praying for her. It has made a big, steady difference. Here is the update for today. Sorry it is so late, I had to run to the airport. Did a little shopping on the way home and just got in.

As good as Hazie is looking she is clearly not out of the woods with this infection. We are at a wait and watch and see for the next couple of weeks.

The PIC line went in very well. They tried it last year and getting the tubing around her shoulder bone was not possible. So we were very thankful it went well with no complications. Hazie is very small, I am not sure how much she weighs now but no where close to 30 pounds and she is 3. I'll guess 24 to 25. Jen, help me out here.

The fourth doctor and his team conferred with the others and jointly they decided that they would take her off one of the meds to see what happens. It is a heavy duty antibiotic and kind of a last resort and since her inflammation came down so dramatically to 6 today they are satisfied that she is heading in the right direction. They don't want to over use that medication. She is still on another one that she will stay on with IV infusion (4 times a day and it take 2 hours to administer each time) for at least the next ten days. Jen and Lowell will learn how to administer it through the IV port with the help of a home health nurse when Hazie gets good enough to go home again. She is still a sick little girl but the port will make it plausible for her to go home sooner than later. A lot depends on the numbers tomorrow.

In general, they are very pleased with her progress and feel they do not want to do anything invasive right now like the spinal tap or anything around the shunt revision. Too risky unless absolutely necessary. So far, they are convinced that the infection is clinging to the shunt tubing but has not gotten inside or into her spinal fluid. This is is the way they want to keep it!

So the plan is get home as soon as she can go with IV meds for another ten days to two weeks. After that watch her very carefully and pray it doesn't come back. If it does come back when the IV meds are finished she will have to have the surgery in a couple of weeks.

So she is still a sick little girl but getting better thanks to the faith of many people, family, friends and doctors. Please continue to pray for her we need this miracle to keep on going until the perfect day when she is well again. Thank you all so much!

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P.S. Grampa has arrived and will help for awhile until they are back into their regular routine again. He replaces Lowell's parents who went for Thanksgiving and are still there!

8 comments:

Julie Harward said...

What a relief and a miracle! I have been gone, so I am just catching up...that was so scary! The look in her eyes and to see her chatting it up on the phone is so good to see! I pray it will continue to get even better! :D

Dorothy said...

Bonnie, I am so sorry for what you all have been going through. I have had family here for a week and just now am catching up with blogs. I do hope that little Hazie keeps progressing and can be home with family soon and that all will go well for her and all the family.
My prayers are with you all.

Marie said...

What a delightful photo Bonnie and a feast for the eyes and heart! As ever we continue to keep Hazie in our prayers. What a little dear she is. Sending you all the love your heart can possibly hold!! xxoo

margaret said...

What a lovely photo - a true Fighting Hazel photo.

girlsmama said...

That is the most darling photo ever! I have always love Hazie's halo of hair. It makes me smile every time I see it. Our prayers continue on her behalf!

Caroline Craven said...

I know there is still a long road ahead, but this is such good news. So much for such a little girl to go through. Our prayers continue to be with all of you. More Christmas miracles coming your way!!!

Sister Susie said...

What a beautiful child! My heart just melts for her health to improve. Prayers are being lifted for your beautlful granddaughter!
Love and hugs,
Susie

margaret said...

Am very happy to read the good news in the side column.