Change of Scenery

Hi, I just wanted to write a new post as I'm gettng tired of seeing the Golden Arches every time I log in here. You must be too. We are having a bit of a down day over here. I need to evaluate it here with you if that is OK?

1. We are getting tired. There is nothing like worry and stress and waiting and boredom to make you nuts. Granted we haven't been here that long this time but the times you are here just all seem to run together.

2. Each day you wake up with some big hopes that something will change~not really, unfortunately. Most of us are use to problems that eventually get resolved. These ongoing birth defect problems that Hazel has just keep turning up new things that cause her problems and more stress for everyone else.

3. I am having to remind myself that we have to take it one day at a time. Once you start to project into the future you get into big problems.

4. The family needs a support group of other parents that have Spina Bifada children. Having a doctor pass by once or twice a day is not enough. We all need someone to talk to that gets this in a real way. By that I mean not just the physical aspect but the emotional aspect of this condition. There has to be a way of normalizing the situation so families can cope.

5. We have to really beef up the faith aspect and remember our job is to ask for what we and she needs. His job is to answer our heartfelt, earnest prayers in her behalf. We need to remember we cannot fix this. We have to learn to adapt. We have to be patient...really patient and we have to count our blessings and name them one by one. I'll start...we are thankful we have all of you and for your support. God bless us all! One day at a time we can do this...!